We were told to be at the NICU at 8:00 am this morning. Well, we were there but the Neurologist wasn’t. He decided to show up around 11:30. The nurse called to see where he was and he basically told her that he would be there when he got there. Of course we are about to throw up we are so nervous about hearing these results. But, we waited patiently for 3 1/2 hours until he arrived. I understand he’s a VERY busy man, but these results were very important to us and a little bit of compassion would have been nice. I’m not trying to complain, but I just had to vent for a second 🙂
Once he got there and reviewed her MRI, him and the neonatologist on duty called us in the conference room. He basically said that the swelling was still there. There is some type of imaging that shows if there has been any damaged/dead brain cells or tissues and this test didn’t show any of that, so that was good news. BUT, he said the brain cells/tissues could still become damaged or die b/c there was still swelling there. Of course this isn’t what we wanted to hear, but we are still hopeful that the next MRI they do will show a reduction in the swelling. This test is scheduled for next Friday.
After we heard the results, we just needed time to ourselves so we could take it all in. We ended up going home for a little while. This was the first time in a week we have been home. Winnie (our cat) was glad when she saw us! Don’t worry, my mom has been making trips to our house to feed her and everything so she is not neglected.
We came back around 4:00 to see Addi. She was sound asleep. The nurse said she had been taking her passy. She never takes it when we are there! After our visit with her, our friends Janna and Jared came to visit from Huntsville. We all went to the Fish Market. It was so nice to spend time with friends and get out of the hospital for a little while! I wish they lived closer!!
Around 9:30 we made another trip to the NICU to see our little girl. She was wide awake and squirming like crazy! Because there is a tube in her mouth she is constantly rubbing her tongue up against it to get it out. She looks like a little lizard! Brad asked the nurse if they could take the tube out for a little while b/c it seemed like it was bothering her so bad. The nurse said it wouldn’t hurt just for a little while. As soon as she took it out, Addi calmed down and closed her eyes. I’m sure when we go back in the morning the tube will be back in, but it gave us peace of mind to know it wasn’t bothering her when we had to leave!
Our sweet nurse that we love so much reminded us of a bible verse today:
We know in our hearts that Addi will be healed and God is taking care of her. There is no need for us to constantly have this fear that something bad is going to happen. It’s not going to do us any good. We just need to continue to give her to the Lord!
On another note, tomorrow is Brad’s birthday!!! The big 3-0! Our plan is to sleep in for a little while. This is something we haven’t done in long time 🙂
* She has no more seizures
* Her infection continues to heal in her tummy
* The swelling in her brain decreases
* No brain cells or tissues get damaged or die