Since my last post there have been many improvements! First of all, the social worker at the hospital offered us two nights stay at the hospital hotel free of charge. This is such a blessing! The hotel is connected to the hospital, so we only have about a 5 minute walk to the NICU. Thanks to many other generous people from both St. John’s and Ridgecrest we have 4 more nights for us to stay here in addition to the first two! We will be basically living in the hotel until Friday. I can’t stand the thought of going home without our little girl.
This morning we woke up and went to see Addi at 9:00 am. We had taken several stuffed animals to keep in her bassinet/warmer and we noticed one had a bandage on his foot and blood pressure cuff on his arm. The nurse wanted to get the stuffed animals in on the action! It made us laugh and we immediately fell in love with this nurse! Because Addi is under a “blue light” for her jaundice, the nurse also made little gauze sunglasses for the teddy bear. Below is a picture of Addi with her “sunglasses” on and then a picture of little bear in his.
I truly believe the nurse that had Addi today was a blessing from God. She was amazing. She took time out to show us everything she was doing while she was checking Addi’s vitals. I even got to get in on the action! She let me take Addi’s temperature. I was so excited b/c I have felt so helpless just going in there to watch her sleep. It’s amazing how such a small
thing like taking your child’s temperature could make you so happy!
There was one point when I got really upset and just broke down. This nurse came and put her arms around me and it just let me know that she really cares and wants to do whatever possible to make us comfortable. Before we left she asked if she could pray with us. We all gathered around Addi’s bed and the nurse led us in prayer. She truly is a blessing and I hope Addi has her again this week.
Dr. Bruce (the neonatologist) happened to be there when we arrived this morning. He said they were going to cut Addi’s ventilator down and if she could breath on her own for an hour without it then they would take out her breathing tube. As we were eating lunch, the nurse called to tell us she was breathing on her own and the tube was out AND we would be able to hold her at the next visiting hours!!!! We couldn’t wait to get over there and hold her…we were shaking with excitement. 🙂 We were only allowed to hold her for 30 minutes b/c she couldn’t be away from the light for that long. Brad and I split the time up and we each got 15 minutes.
The only tube she has in now is her feeding tube. They are gradually increasing the amount of food she is getting. The difference in the way she looked this morning versus this afternoon is amazing. She is so much more active and she had her eyes open the entire time we were holding her.
They also suggested we carry around little stuffed animals in our shirts and later put them next to her head so she can start learning our “smell”.
We are continually amazed by the support and prayers we are getting. We love the phone calls and visits. There is a family room right across the hall from our room and it has been filled with people at all times today. Please pray for the EEG tomorrow. Our specific prayer is that they find no brain damage or increased swelling. Thanks again for your love and support.
We are going back to visit her at 11:30 pm. Hopefully I will have more good news to share!